Stand Up for Your Health

If you struggle with wheelchair life like I do- whether you're a full-time user or a convenience user- you'll understand the benefit and appeal of using a standing-frame.

Many of us have been through years and years of struggle with medical equipment coverage through the federal healthcare system. My first manual chair took the company two years to sort out through my MediCal insurance- and I've heard horror stories of electric wheelchair batteries giving out and waiting months and months for a new one. But I won't get into all of that right now. Basically, if you're not loaded with money, getting a standing-frame is no easy feat.

Well, I have a solution! I've spent years looking for the perfect standing-frame; I had an eye out for a manual one to facilitate as much muscle use as possible- an important factor when facing a degenerative-muscular disease. In the recent years, I’ve found the perfect one- and as I face the everyday struggles of my disorder- this frame has done wonders in keeping me as supple as can be, and also to quell my feelings of impending doom/futility.

Depending on your mobility independence, this standing frame offers a variety of exercises. If you are able to reach standing position alone but lack confidence in free-standing/or you struggle with balance, these bars are terrific to grip while bracing yours knees and doing squats. This is a super-exercise for your knees, ankles quads and core. Toe-lifts (with the added stability of a bar) are another win. Also, just standing there is great for your organs. Personally, I require some assistance getting upright, and am lucky to have a man who’s willing to lend me a hand with my personal training/exercise routine. Even if you need a friend, helper, parent, or PT teacher to hoist you up, this frame is still great. I like to hold on to the front bars while holding my wrists even- flexing my fingers- and sitting on the rest. While I’m here, I try to move my feet and ankles around, engage the muscles around my knees, and straighten/arch my spine and neck, and even slowly look over one shoulder then the next. It’s so important to keep your spine engaged. Also, of course I like to stand fully, rocking from left to right foot. Lately, I’ve been enjoying listening to chakra healing sounds while I do this, and visualizing my body as a wholly functional conduit of energy. Whatever your preferences are, find your sound and MOVE!

Boost Your Energy Production & Your Heart with Natural Co-Q10

I recommend this product with the greatest enthusiasm. With the incessant fatigue and lack of stamina that accompany my neuromuscular disorder, I have found Co-Enzyme Q-10 to be the most helpfully nourishing supplement for my body. It has always been the top recommended vitamin among circles of caregivers and victims of those with Friedreich's Ataxia- though I know that many (including myself, for a number of years) take synthetic derivatives of the supplement, believing the highest dosage can only be attained through a lab. Through years of different approaches, jumping from natural animal and plant medicine, to laboratory-born creations, then back to everything organic and natural (following nigh a year of intensive chemotherapy), I'm going to have to disagree with this notion that synthetic is better/more substantial in delivering nutrients to the body.

Now, please don't hastily conclude that I'm saying synthetic pills brought cancer into my life. Many people- doctors/scientists/nutritionists included- DO argue this, and I am not rejecting the notion but at the same time I am not pointing the finger either. I am simply stating that I, personally, have felt a more positive impact on my body from health supplements which have not been altered by anything save sunshine, water and love. Call it anecdotal evidence if you wish, but know that I am big on the epigenetic effects that come with feeding your body well.

Friedreich's Ataxia, the progressive, life-shortening, depressing genetic disorder that affects 1 in 50,000 in the US, is known to affect the body's large muscles first. Starting with the legs, the tongue, the heart. As Co-Enzyme Q-10 boosts not only cardio-vascular health but improves function of all muscles and helps reduce oxidative stress, it is believed to be the most vital of vital minerals an FA person can ingest. Needless to say, Q10's many benefits make it optimal for any aging person, recovering athlete, disease-sufferer or just anyone, period.

As usual, forgive my long introduction and let me get to the point: Co Q-10 is the answer to higher energy/stamina/muscle function, and like everything involving your body, treat yourself and our planet with a natural approach to it. One of my favorite health care treatments is MRM's CoQ-10 with L-Carnitine, conveniently delivered to your body in a sublingual form. Meaning? You can simply drink it, thusly your system absorbs it faster. If you decide on this, which you totally should, take a few doses at a time (especially if you have FA). It is so worth every penny.

Sheets of Divinity

These sheets. My best friend visited last weekend and inspired me to share this valuable information- where did I find those absolutely divine sheets?! Here they are- amazingly soft, breathable, 100% cotton, AND astoundingly affordable!

I have a few pairs of them- I was looking for an all-cotton solution to make my movements easier while sleeping. I definitely recommend these if you suffer from mobility issues. Or even if you don’t- because they feel like heaven.